Potential kidney donor for Liz Thonmson: All she wants is to be self-sufficient


CORNWALL — Liz Thomson’s days are filled with dealing with dialysis for her failing kidneys, the symptoms of the systemic lupus that caused it, and now, chemotherapy for the autoimmune disease.

"The chemo isn’t so great," she said, "but I feel mentally stronger than I have ever been."

Ill since she was 13, all the 24-year-old wants is to be able to lead a normal, self-sufficient life.

"I just want to be a grown-up and be able to take care of myself. I want to finish college and to work and to not have to rely on my parents or anyone else," she said.

The reason for her optimism is a potential kidney donor. Life will be so much better with a fully functioning kidney, she says. Thomson can see herself fulfilling her dream of becoming a teacher. Ironically, the potential donor is a teacher. Amazingly, the two have never met.

Jane Hanley is Thomson’s sister’s Spanish teacher at Cornwall Consolidated School.

"I saw the story about Liz in the paper," Hanley told the Journal. "I feel so strongly about organ donation, I always thought that if I could help family or friends that way, I would. I was very inspired, and I think of everyone at school as family."

"She’s just my sister’s teacher. She didn’t even know me," Thomson said, in awe of Hanley’s generosity. "Even if it doesn’t work out, she is going through so much testing just to find out if she is compatible."

The odd angle to the testing process is it is done sort of in reverse. General health, cancer screening and physiological testing are done first. A couple of weeks ago, Hanley underwent chest X-rays and gave seven vials of blood for compatibility testing. She is waiting for an answer to the latter, vital test. The final step is a glucose tolerance test to determine kidney function. It is a time-consuming, demanding test that is saved for last for those reasons.

"You would think they would do it first," Hanley said, "because they find a large number of people who want to donate a kidney actually have only one that is functioning properly."

It all means frequent trips by Hanley to either her own doctors or to Hartford Hospital, where Thomson was on the transplant list. She recently moved her affiliation to New York Presbyterian Hospital, hoping to increase her odds. Hartford has agreed to handle the testing to make it more convenient for Hanley.

Hanley said she is not nervous at all about the prospect of major surgery and a long recovery.

"My husband is nervous and my mother’s a wreck. But I just feel so lucky to have the health to be able to teach and do what I enjoy. My kids are growing up and I am looking ahead to having more time to devote to things that are almost as important as raising kids. I always ask myself how I can give back."

She will do so in a big way in June when she travels to Africa with a group led by her sister-in-law, Chris Hanley, to aid children at the Mekele School for the Blind in Ethiopia. She does not want to change those plans, even if she gets the go ahead for transplant. At the same time, she doesn’t want to let Thomson down.

"I spoke with an infectious disease specialist at the hospital. There are no real concerns about my going to Africa for such a short time. They’ll do some extra testing when I get back, and we’ll be able to make a final decision."

"Liz and I have only talked on the phone, but I want to do this so badly for her. The success rate goes up drastically when the kidney comes from a live donor. I believe this was meant to be."

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